12.08.2025 / NHS Leicester
Not a great day found I been left in the dark! I need some social care support at mo I paying
Feeling lost and overwhelmed, I found myself in the dark today. It's been a tough day, to say the least. Social services have been withholding information from me, but thanks to my advocate, the truth is finally coming to light. I'm in need of some serious social care support right now, and it's a struggle that I shouldn't have to face alone.
One positive development amidst the chaos is the proactive stance my GP has taken. Despite the slow progress of social services, my GP has arranged for me to see an Occupational Therapist, a crucial step in addressing my unique needs. It's essential for my GP to understand my pain perception, especially as someone with autism. The way I experience pain is different, and it's important to have this documented in my medical records and a hospital passport to ensure proper care in emergencies.
Today, the shortcomings of the current care system hit me hard. With only 2 carers allocated for 4 hours of care, it's clear that the support I receive is inadequate. My advocate is pushing for a comprehensive assessment to address the gaps in my care plan. The incident in my wet room today, where I broke a mirror waiting for assistance, highlights the urgency of the situation.
The lack of support has taken a toll on my well-being, as I've been neglecting basic needs like eating and drinking. The delayed attention from social services and the absence of a structured care routine have left me vulnerable and isolated. It's crucial for the healthcare system to recognize the specific challenges faced by individuals with autism and learning disabilities to prevent unnecessary tragedies.
In the midst of this struggle, I find solace in the support of my GP and advocate. Their dedication to improving my situation gives me hope for better days ahead. By sharing my story, I hope to raise awareness about the importance of tailored care for individuals with unique needs like mine. Every voice matters, and every life deserves to be valued and supported.
Today may have been dark, but I hold onto the flicker of light that promises a brighter tomorrow. I refuse to be left in the shadows, advocating for the care and support that I deserve. Thank you to those who stand by me in this journey towards better social care and understanding. Together, we can illuminate the path towards a more inclusive and compassionate future.